Friday, September 20, 2013

In an instant...

You always know that life can change in an instant...we experienced it this past Monday. 

Kate had fever off and on Monday. It had been as high as 103, so I kept her on regular doses of Tylenol/Ibuprofen. She had played most of the afternoon, but towards bedtime was getting fussier. I gave Kate and Maddie a bath, and realized Kate was getting fever chills. I took her out, and we sat and laughed at Maddie for a bit. We began the regular routine for bedtime bottles, and within seconds I knew something was wrong. Kate started blankly staring and not opening her mouth. I called for Matt and we both knew something wasn't right. There are always kids or families on our street at night, so I walked out with Kate to see if their was a pediatrician on our street. Our neighbor suggested running her up to the clinic because at this point she was just lethargic. Within seconds of starting to get her in the carseat things got worse. Her body stiffened, head turned sideways, and started grunting...Matt and I both knew she was seizing. I ran to the tub to pour cold water over Kate, while Matt called 911. We talked back and forth about what she was doing and monitored her breathing. We walked to the garage to wait on the ambulance, the seizing was getting worse, then came foaming, then vomit. I lost it...Our precious neighbor ran across the street and helped get Kate on her side. I couldn't feel her breathing as well. Our neighbor stepped in, and I remember her saying, "It's very shallow." The 911 operator then asked for them to say breath every time they felt her breathe...I could hear her say breath........breath........breath. Too long between them! It was at that point I thought, "I can't lose my baby right here in the garage." I was begging God for mercy...

The ambulance arrived very quickly! They started working on Kate in the ambulance, and said, "She is coming to." We thought all was improving. During this time, Maddie was HYSTERICAL! Not only did she probably sense something was wrong with Kate, Matt and I had to pass her on to neighbors and then Matt's mom. We made the decision that I would ride in the ambulance. Kate was still seizing during the ride. At one point the EMT began to give her oxygen, and told the driver, "We need to upgrade." The sirens came on...not what you want to hear...

A sweet firefighter carried Kate into the ER. He unfortunately left before I had the chance to thank him. He advocated for Kate once we arrived at the ER, and insisted calmly on them acting quickly. Kate continued to seize for almost 2 hours, they became more spastic, and her breathing was more irregular. She wasn't responding to anything. The ER doctor informed us we were "going to Children's" and they were going to have to intubate her. From then on is a blur...

Matt and I made the difficult decision for him to go with Kate on the helicopter, and I would drive down with Maddie in the morning. I've never been so torn in my life. I knew Maddie needed comfort and stability, yet I couldn't let Kate go. 
Throughout the chaos Matt kept saying, "She's not ours...she's His." As much as I didn't want to hear those words, I knew Kate was His long before we knew her. I knew in those moments that I had no control over the number of her days. I knew that God was/is sovereign, but that doesn't always mean good. Before they took off, I told Matt, "don't let them lose her." But, I was also begging God that I would see her again. 

Matt's dad and I watched as AngelFlight took off. I was elated later that night to receive this from Matt.

No more seizing, no more intubation (She tried to pull it out! Kate is tough!)

Kate spent 2 nights at AR children's hospital for observation and testing. The days and nights were rough. She was VERY upset when awake, groggy from the large amounts of seizure and sedation meds, and probably very sore from seizing for 2 hours. The neurologists finally diagnosed it as a complex febrile seizure. Typically febrile seizure last 5-10 minutes or will stop on their own. Kate's was a little more alarming due to the length of seizing. An EEG showed nothing abnormal and all blood work came back clear. 

When you are in a children's hospital, you are reminded just how blessed you are. Kate was in the PICU for one day. We watched as families showered, heated up food, and practically lived on that floor with their sick children. It puts into perspective our "hard" days are nothing compared to some families. People kept asking how Matt and I were doing. Both of us were running on little sleep and lots of adrenaline. We arrived home yesterday and it was the first time I became emotional. It was this moment that made me cry.

To watch her play in our home brought me to tears. On Monday night I didn't know how long it would be until she was home again...I didn't know if I would bring her home. God is so good...

(I'm going to do a separate post on Maddie. This has been extremely difficult for her also.)

Thursday, September 12, 2013

11 Months!

11 months! Seriously?!? Can't believe it! The past months have flown by! I never understood why moms got teary-eyed thinking about their babies turning I get it! :)

What is life like with twins?!?...this:
-Weight/length: Maybe around 16-17lbs...still very light!

-8 teeth, and Dr. Bowen felt your molars coming in...ah!
-You are rarely called Kate still...usually Kater, Kate-Kate...and now Tots...(Kater-tot turned into just tots). I'm sorry again...
-Say bye-bye, daddy, "bo" (book), "bu" (Bula-dog), and other twin language jabber
-Clap, wave, and put your hands up when I say "Where's ______?" 
-Cruising some, walking with the walker, and standing alone a interest in walking while we hold your hand! 
-Love to lay on blankets or pillows...maybe you will cuddle eventually!
-Throwing things is hilarious...balls, toys, unfortunately food too...
-Going to bible study on have had a little harder time skipping a nap and being away. Last week you were all smiles!
-You used to eat you rarely will try anything besides cheese, toast, or peas...if it's too mushy or slimy you will not touch it. Eat little one eat! ;)


-Weight/Length: getting heavy! :) Plus a cute little roll on your legs! 

-8 teeth, molars coming too!
-We are just going to pretend you are saying things...haha...lots of twin jabber and when you really get talking the finger gets moving!
-You like to crawl over to the dog toys, wave your little finger, and jabber as if to repeat back to me "no, Lily's toys." 
-You are a biter...not when you are mad, you just put your face to everything and bite..
-Shoes are your favorite. You put your hands in them and crawl around...then I have to take them away after you start licking them...;)
-A little attached to Dad! :)
-They LOVE you in the nursery! You are a such a mess and love attention!
-Super messy eater! You spread your food everywhere and shovel it into your mouth. 
-Favorite foods: Avocado, banana, toast, puffs, cheese, peas

-Moving has been the best thing for Kate and Maddie's sleeping...maybe their room really was that loud in Little Rock, or maybe we have hit a consistent time in their development...either way I'm one happy, and more relaxed mom! (Or the lime green and neon pink walls of their new room may be calming! haha...will be changing soon!)
-Still morning and afternoon nap. Afternoon naps have been better, usually 1hr 30 minutes-2hrs. I've loved one on one time if Kate or Maddie wake up before the other. I can actually sneak in/out of their room!
-Down by 7:30 still...waking closer to 7:00...but Maddie decided to have a party at 6:00 two mornings lately! 
-They almost always talk/laugh to each other when we lay them down

-4 bottles still of regular formula. Usually 5-7oz. I thought they were starting to drop a feeding earlier, but have picked back up.
-Drink milk and water out of a sippy cup finally! I know I should start switching their bottles to sippy cups, but with as little as they are I want them to take in plenty of ounces! 
-Started to not take purees...then I switch to all finger SUPER picky about finger foods, and have had to go back to some purees...ugh! Trying not to stress about it and praying they will eat more as we get closer to 1 year!
-First reaction to foods. I gave them hummus the other day...both broke out in a rash on their faces. 

Our next monthly post will be for their birthday celebration! I will not be getting the mom of the year award for your birthday! Lucky to get invites out and have a cake! ;)